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rare disease
rare disease

Rare Diseases Unveiled: Inspiring Stories of 5 Celebrities' Resilience

Many Famous individuals have rare diseases, some lost their battles, while others are still struggling… Explore the resilience of 5 celebrities facing rare diseases. Discover their inspiring stories and raise awareness. Empower and educate through their unique journeys.

1. Dermatomyositis

Suhani bhatnagar
Image source: Wikimedia Commons

Suhani Bhatnagar – Dermatomyositis

You may have heard that the famous ‘Dangal’ actress Suhani Bhatnagar recently passed away at the age of 19 due to Dermatomyositis.


  • This condition is characterized by muscular weakness and a distinctive skin rash.
  • Symptoms include violet or crimson rashes, escalating muscular weakening, and heightened skin sensitivity to sunlight.

2. Vestibular Hypofunction

Varun Dhawan
[Image source:Wikimedia Commons]

Varun Dhawan – Vestibular Hypofunction


Varun Dhawan battles with Vestibular Hypofunction, an illness impacting balance.


  • This condition arises when the vestibular system, which collaborates with the eyes and muscles to sustain body balance, malfunctions.
  • When the system fails to function properly, the brain receives inaccurate signals, leading to dizziness.

3. Chronic Subdural Hematoma

Image source: Wikimedia Commons

Hrithik Roshan – Chronic Subdural Hematoma


  • A rare condition, Chronic Subdural Hematoma, is marked by the buildup of blood between the skull and the brain’s surface.
  • Frequently resulting from head injuries causing blood vessel rupture, the bleeding occurs gradually.

Symptoms may include: 

  • Chronic headaches
  • Disorientation
  • Slurred speech
  • Memory loss

These symptoms may not manifest for weeks or months.


Actor Hrithik Roshan confronted this challenge in 2013.

4. Cleidocranial dysplasia

Gaten Matarazzo
Image source: Wikimedia Commons

Gaten Matarazzo – Cleidocranial dysplasia


Gaten Matarazzo, renowned for his role in Stranger Things, grapples with Cleidocranial Dysplasia (CCD).


  • Those with CCD might encounter delayed skull fontanelle closure, abnormal collarbones, and teeth issues such as underdevelopment or absence.
  • Despite these challenges, Matarazzo stands as a beacon of advocacy, actively raising awareness about CCD and promoting self-acceptance.

5. Synesthesia

Billie Eilish
Image source: Wikimedia Commons

Billie Eilish – Synesthesia


Billie Eilish grapples with the rare disorder of synesthesia.

  • Whether innate or developed later in life, Synesthesia reveals a captivating cross-activation of brain regions linked to different senses.
  • For example, some people may see colors when they hear music or associate specific tastes with certain words.
  • In Eilish’s case, this condition enhances her artistic expression, enabling her to perceive and convey music uniquely, resonating with audiences worldwide in an immersive way.

While the origins of rare disorders remain unknown, they are thought to stem from genetic mutations and, at times, environmental factors.

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Author: Priya Bairagi

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